Tag Archives: autistic triggers

FB Group: Autistic Adults

Being autistic is a challenge that can be very trying even on your best day. From my experience, people don’t generally think like I do or even process information the same way I do. Bluntly put, I am the odd man out when compared with society. Due to my trouble with noise, I cannot live in a city or town; in fact, I live nearly twenty miles from the closest thing that you could consider to be a town. Even living where I do, next to someone that will not control their barking dog is emotionally draining on me.

Lately, I’ve been very depressed because of various issues going on in my life and I thought that maybe I could join a support group for people that were autistic and hopefully find some people that were a little more like me. So I searched for a few groups on Facebook and joined a couple that I thought I would mesh in. One of these groups was for LGBT autistics, and while the people there didn’t talk much I found that almost everything was geared towards people with Asperger’s, which is on the ASD scale, but it just isn’t how I am identified. Due to this, I quietly left the group after a little lurking because it didn’t feel like it was for me. If the group is still around when my son is older then I’d probably introduce him to it, but it just wasn’t my cup of tea.

Another group that I joined was called Autistic Adults, which you can find here if you’re interested.

I joined this group because I thought it was great to finally find a group of adults, that are supportive or so I thought. I asked on the group if anyone else had trouble getting a diagnosis as an adult. I had a few comments on the troubles that other people in the group had getting a diagnosis as an adult and had pretty much resigned myself to a long drawn out battle with doctors that don’t want to give me an answer or diagnosis. I’ve already been screened and the result was positive.

The one of the admins ( I had no clue he was an admin at the time.) chimed into my conversation and made suggestions that I’ve already tried. I told him this, and it seemed like he suddenly had a bone to pick with me. First, he had tried to suggest something that I had already done, which was get a screening. I had stated in the first post, that I just needed the official diagnosis and the screening was already done.

You can see that here in the screenshot.

 

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After this post, this guy kept pushing for me to call doctors (this is after the group had had a discussion about telephone conversations and I had admitted that talking on the phone gives me panic attacks, even thinking about talking on the phone can be triggering.) I told him that there were literally no doctors in my area that would diagnose an adult with autism that was respectful and that I couldn’t travel any distance because my SUV (Good Old Bessie) was currently broken down, but this wasn’t good enough of an answer it seemed.

After this, the guy told me that I should have my friends take me to the doctors.

I laughed. I’ll admit it. I fucking laughed at the computer screen when I read that, I laughed because crying would hurt too much. I told him I don’t have friends, and that I lived twenty miles from the nearest town.

I don’t have friends…something that has been so ungodly painful since June, just thrown into my face. So of course, I’m going to be annoyed with this guy now. He had to be right and I had to be lying, at least, that’s how it seemed to me, how could anyone not have friends?

If that wasn’t bad enough then this guy starts trying to tear apart everything I’ve said to other people. I present to you:

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Not that it is any of this guys business, but yes, because of transportation I haven’t been able to see my therapist since October, something that has not been very good for me.

It was after that post that this guy starts privately messaging me and demands to know if I use drugs and then accused me of using a fake name!

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So yeah, after you accuse me of using a fake profile name, I’m going to be pissed. Using profile names that don’t match the name on their driver’s license has caused A LOT of transgender people to have their accounts shut down. My legal name is Aydan Keeley O’Connor and I’m damned proud of it, I fucking paid enough for it.

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It was clear this guy didn’t care what was “going on with me”, because if he had his opening message wouldn’t have been questioning me about drug use.

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Now, I shouldn’t have to explain this to an admin of a Facebook group, but because he isn’t my “friend” my screen name of AydanKOConnor (which is the link for my FB page) is going to come up, not my name. Then he began to question what I write? This guy didn’t introduce himself to me when I first joined that page several days prior, and now because I didn’t idolize him as some god he was harassing me and demanding to know about me? I don’t think so. I stopped talking to him, but I did message one of the other admin and creator of the group when I first started having trouble with him. She did nothing.

My wife even wrote her and other admins and this was the response she got.

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From what my wife understands this guy was telling other admins that I was using a fake name.

Why? Because he didn’t know how facebook works. If you’re not my friend, you’re not going to see much on my page. However, because this David fellow thought I was using a fake name because my account name was showing up I was removed from the only group that I had found to be catered to adults with autism.

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See the difference? AydanOConnor was already taken when I tried to set my facebook username so I used AydanKOConnor instead. K as in Keeley which is my legal middle name.

I feel like the real problem is this though:

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Right at the top of my groups (which are viewable for all) is the fact that I belong to an LGBT group for ASD. The reason I say this is because when my wife wanted to know why I was so upset ( this put me in meltdown mode) and I shoved my phone at her, and after she read the messages she sent this guy a message of her own, wanting to know why he was doing what he was doing.

He started by belittling her and accusing her of using a fake name as well, and when my wife sent him a picture of proof of who she was, he wanted to know if she (my wife) was really me. So my wife sent him a photo of my ID, and then he started asking for personal information.

So because of this gem, I almost had a complete meltdown on top of teetering back and forth on being suicidal. This is not the way you’re supposed to treat each other in a support group.

I wanted to share this with anyone that reads my blog because I don’t want it to happen to anyone else. We don’t need anyone TG suicides or suicides period for that matter, and if I didn’t have such a wonderful wife, this would have seriously pushed me to end it all.

 

Animals

1 bearded dragon
1 African Ropefish
1 green anole
1 angora rabbit
2 guinea pigs
4 cats
6 mallard ducks
1 Orpington duck
6 Orpington chickens

Without my animal friends my family wouldn’t be complete, they are after all in a way some of my only friends. Some people call them pets, some call them companions, I call them my family. Being autistic means my world is vastly different from the some seven billion other people that live on the planet we all call home. The various stimuli: tastes, textures, sounds, smells, and even emotions, that normal humans process and discard end up like a spiraling tornado of confusion in my mind.

It’s hell trying to find socks that feel right on my feet, or shirts that aren’t too tight against my arms or long enough to cover my hands. While things like these may not annoy or even be a concern to other people it can cause me to have a meltdown. If inseam on my socks rub against the side of my toes, or my shirt is snug or ¾ length, it can push me to a breakdown where I’m on the point of destruction, and I can’t help it.

I tell myself over and over that it’s okay if the line on my socks touch my toes or the shoulders in my shirts can be loose rather than baggy. It is okay two cars in front of me just ran the red light because it doesn’t affect me personally. I tell myself to ignore the screaming children and the mother doing nothing about it, ignore the murmuring of voices as people go about their lives, the humming of electronics, the rumble of vehicle engines…

But I can’t.

The clothing starts to hurt and I have to remove it, it feels like I’m suffocating then I can’t breathe. I can’t think, everything starts to shut down and my mind goes into a panic phase where I have to get rid of whatever is causing the problem or I feel like I’ll die.

The noise becomes so loud it is deafening, and all I can hear is that one trigger noise, everything else fades away. It’s like putting your head between two speakers at a rock concert with the volume on MAX. You can only hear that one specific noise and nothing else.

Problems like these make interacting with people or society in general difficult in a face to face situation. Making and keeping friendships is impossible because most people don’t want to take the time to understand me as I try to do for them.

It is because of these reasons that I am so close to my animals, they don’t care if I’m having a bad day and need to be alone. My upset or meltdowns don’t bother them and they are there to comfort me without any judgment. They don’t blame me for problems that I cannot control, no matter how hard I try. It is funny how people refer to each other as animals when they do or act in a manner considered uncivilized; however, they are more judgmental and cruel than any animal has ever been.